Hi everyone! Welcome to my official blog “Bernie’s Fight”. Here, I’ll share my Fibrodysplasia Ossificans Progressiva (FOP) story. From when I was diagnosed at 7 until now at 30 years old. I’ll share my experiences, memories, and even some advice that could help all other FOP patients. My goal is to advocate for FOP and spread awareness. I hope you enjoy and follow along!


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